Congressman Nick Langworthy Introduces Bill to Support the Wellbeing of Family Caregivers

WASHINGTON, D.C. – Today, Congressman Nick Langworthy (NY-23) introduced the bipartisan H.R. 2560, the Lifespan Respite Care Reauthorization Act, which would extend funding for programs that provide short-term relief to unpaid caregivers who look after people with disabilities or chronic conditions. Congressman Langworthy is joined by co-lead Rep. Tokuda (D-HI) in introducing this bill. Senators Susan Collins (R-ME) and Tammy Baldwin (D-WI) introduced the companion to this bill in the Senate. 

"Too often we see family members who are full time caregivers on top of the other responsibilities of life. While this is selfless and heroic work, it is often financially and emotionally taxing on the entire family,” said Congressman Langworthy. “Respite care helps to reduce mental stress and physical health issues that family caregivers may experience, keeping them healthy and families intact.”

Specifically, the bill reauthorizes funding for the Lifespan Respite Care Program through fiscal year 2029. The Lifespan Respite Care Program plays a crucial role in supporting caregivers and enhancing the overall quality of life for individuals with chronic conditions or disabilities, such as Alzheimer’s or dementia. By providing funding opportunities to states and programs, these programs offer caregivers a temporary break from the heavy physical, mental, and financial tolls associate with caregiving that, all too often, go unnoticed. This can, in turn, improve the quality of life for both caregivers and individuals living with chronic illness. 

“In rural areas, where access to healthcare and respite services can be very limited, caregivers go above and beyond to provide essential care to loved ones with disabilities and chronic conditions. The Lifespan Respite Care Reauthorization Act provides much-needed support to the unsung heroes of our communities,” said Rep. Tokuda. “I’m proud to join Rep. Langworthy in introducing this bill to ensure caregivers continue to receive the resources and relief they deserve. By reauthorizing this program, we are helping to keep families together, reduce caregiver burnout, and strengthen our rural health safety net."

This legislation has also received support from thirty-five organizations, including: AARP, Access Ready Inc., ACCSES, Aging Life Care Association, Alzheimer's Association, ALS Association, American Academy of Pediatrics, American Association of Caregiving Youth, American Association on Health and Disability, American Music Therapy Association, American Therapeutic Recreation Association, Autism Society of America, Autistic Self Advocacy Network, Autism Speaks, Christopher & Dana Reeve Foundation, CommunicationFIRST, Elizabeth Dole Foundation, Epilepsy Foundation of America, Generations United Inc., Lakeshore Foundation, National Academy of Elder Law Attorneys, National Adult Day Services Association, National Alliance for Caregiving, National Council on Aging, National Down Syndrome Congress, National Federation of Families, National Military Family Association, National Multiple Sclerosis Society, National Respite Coalition, The Arc of the United States, The Sibling Leadership Network, United Spinal Association, United States International Council on Disabilities, USAging, Well Spouse Association.

Christopher Banks, President and CEO of the Autism Society, said that the organization,"supports the reauthorization of the Lifespan Respite Care Act, recognizing it as a crucial step toward ensuring families in the autism community have access to essential respite services. By offering caregivers the opportunity to rest and recharge, this legislation not only honors the tireless efforts of those supporting individuals with autism but also plays a vital role in preventing caregiver burnout. Sustaining access to respite care is fundamental to the well-being of both families and the individuals they care for, ultimately contributing to the creation of stronger, healthier communities for all." 

“Over 11 million Americans are providing unpaid care for loved ones living with Alzheimer’s, providing an estimated 18.4 billion hours of care valued at nearly $350 billion. The bipartisan Lifetime Respite Care Reauthorization Act will provide our nation’s caregivers with necessary relief and support, helping care for these individuals who care for others,”said Robert Egge, AIM president and Alzheimer’s Association chief public policy officer.“Thank you to Reps. Langworthy and Tokuda for introducing this critical bipartisan legislation and supporting America’s caregivers.”

"Respite is a lifeline for millions of family caregivers who provide essential support for loved ones across the country. The Lifespan Respite Care Reauthorization Act of 2025 is a step towards recognizing the critical role caregivers play in our communities and economy, ensuring they have the resources needed to sustain their well-being,”said Jason Resendez, President and CEO, National Alliance for Caregiving.

“Caregivers play an essential role in the lives of many autistic people—often providing around-the-clock support that goes unpaid and under-recognized,” said Keith Wargo, President & CEO of Autism Speaks. “We’re grateful to Representatives Nick Langworthy and Jill Tokuda for championing the reauthorization of the Lifespan Respite Care Program. By offering caregivers a break from the physical, emotional, and financial demands they face, this legislation helps protect their well-being—and, in turn, the well-being of the people they care for.”

“Everyone needs a break sometimes. That is especially true for caregiving. Caregiving can take its toll,”said Alexandra Bennewith, Vice President, Government Relations, United Spinal Association.“The Lifespan Respite Care Program helps ensure we keep caregivers healthy with appropriate rest.  United Spinal represents the nation’s 5.5 million wheelchair users who most often require caregivers in order to lead a fuller quality of life. That number is projected to grow and the graying of America is only going to increase the need for this program.  Already, 5 million children, those under 18, are serving as caregivers for their parents or grandparents. These numbers are just the tip of the iceberg. We need to give caregivers some space and supports to be able to recuperate before the whole system breaks. Congress should pass and fund the Lifespan Respite Care Reauthorization Act now.” 

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